Support for families

Support groups

Social network for health with over 500 communities covering a wide range of health issues. Visit ERIC’s message board to chat to others experiencing a childhood bowel or bladder problem.

Child Continence Support Group (CCSG)

Movicol Mummies

Encopresis Support UK

Daytime Wetting in Children and Teens

LIBBI UK - Leaks, incontinence, bladder and bowel issues

Encopresis Support Worldwide

Children's Continence Support

Mitrofanoff Support Group

Bowel and bladder health information

Bladder and Bowel UK (formerly PromoCon) -
Part of the organisation Disabled Living, provides advice and support to help manage any kind of incontinence, bladder or bowel-related issue.

Bladder and Bowel Community -
Support, information and guidance for people with bladder and bowel control problems.

Bladder Health UK -
Provides support to people suffering from all forms of cystitis, overactive bladder and continence issues.

Mitrofanoff Support -
Provides emotional support, reassurance, information and networking opportunities for those who have had the Mitrofanoff procedure.

CHAMPS Appeal -
Supports children living with Hirschsprung's Disease and their families during diagnosis and surgery. Also provide post-operative support and activity days.

Colostomy Association -
The Junior Ostomy Support Helpline (JOSH) for parents and carers of children who have had bladder or bowel surgery resulting in a stoma or bladder augmentation.  

National Institute for Health and Care Excellence (NICE) guidelines

Bedwetting in under 19s -
Guidance on the assessment, care and treatment of children and young people up to the age of 19 with bedwetting.

Constipation in children and young people: diagnosis and management -
Guidance to support the early identification, positive diagnosis and timely, effective management of constipation in children and young people.

Urinary tract infection in under 16s: diagnosis and management -
Guidance on the care and treatment of babies, children and young people under 16 with a urinary tract infection (UTI).

Support for parents and carers

Patient -
Independent health platform providing information for both patients and health professionals.

Medicines for Children -
‘Practical and reliable advice about giving medicine to your child’ – includes leaflets written by paediatricians and pharmacists.

The Breakaway Foundation -
UK-wide charity supporting children and young people with bowel and/or bladder diversions and dysfunction.

Home Start –
UK family support charity. Home Start volunteers help families with young children to deal with whatever challenges they face.

Family Lives -
National support charity ‘helping families with any problem or challenge they face’.

Parenting Across Scotland -
Partnership of charities offering support to children and families in Scotland.

National Autistic Society -
National charity for autistic people (including those with Asperger’s syndrome) and their families.

Action for Children -
Work to make sure every child and young person 'has the love, support and opportunity they need to reach their potential'.

Scope -
Provide support, information and advice to disabled people and their families.

Living Made Easy -
Impartial advice and information about daily living equipment and other aspects of independent living for children, set up by the Disabled Living Foundation.

Family Fund -
UK charity providing grants for families raising disabled or seriously ill children and young people.

Turn2Us -
National charity helping people in financial hardship to gain access to welfare benefits, charitable grants and other financial support.

The Sleep Charity -
Providing advice and support to empower the nation to sleep better

Contact -
National charity for families of disabled children.

On this page...

    Upcoming events

    Share this page