Free helpline: 0808 801 0343 Mon to Thur, 10am - 2pm
Support for families
Support groups
HealthUnlocked
Social network for health with over 500 communities covering a wide range of health issues. Visit ERIC’s message board to chat to others experiencing a childhood bowel or bladder problem.
Child Continence Support Group (CCSG)
Daytime Wetting in Children and Teens
LIBBI UK - Leaks, incontinence, bladder and bowel issues
Bowel and bladder health information
Bladder and Bowel UK (formerly PromoCon) - www.bladderandboweluk.co.uk
Part of the organisation Disabled Living, provides advice and support to help manage any kind of incontinence, bladder or bowel-related issue.
Bladder and Bowel Community - www.bladderandbowel.org
Support, information and guidance for people with bladder and bowel control problems.
Bladder Health UK - http://bladderhealthuk.org
Provides support to people suffering from all forms of cystitis, overactive bladder and continence issues.
Mitrofanoff Support - www.mitrofanoffsupport.co.uk
Provides emotional support, reassurance, information and networking opportunities for those who have had the Mitrofanoff procedure.
CHAMPS Appeal - https://www.facebook.com/champsappeal/
Supports children living with Hirschsprung's Disease and their families during diagnosis and surgery. Also provide post-operative support and activity days.
Colostomy Association - www.colostomyassociation.org.uk
The Junior Ostomy Support Helpline (JOSH) for parents and carers of children who have had bladder or bowel surgery resulting in a stoma or bladder augmentation.
National Institute for Health and Care Excellence (NICE) guidelines
Bedwetting in under 19s - www.nice.org.uk/guidance/CG111
Guidance on the assessment, care and treatment of children and young people up to the age of 19 with bedwetting.
Constipation in children and young people: diagnosis and management - www.nice.org.uk/guidance/cg99
Guidance to support the early identification, positive diagnosis and timely, effective management of constipation in children and young people.
Urinary tract infection in under 16s: diagnosis and management - www.nice.org.uk/guidance/cg54
Guidance on the care and treatment of babies, children and young people under 16 with a urinary tract infection (UTI).
Support for parents and carers
Patient - www.patient.co.uk
Independent health platform providing information for both patients and health professionals.
Medicines for Children - www.medicinesforchildren.org.uk
‘Practical and reliable advice about giving medicine to your child’ – includes leaflets written by paediatricians and pharmacists.
The Breakaway Foundation - www.breakawayfoundation.org.uk
UK-wide charity supporting children and young people with bowel and/or bladder diversions and dysfunction.
Home Start – www.home-start.org.uk
UK family support charity. Home Start volunteers help families with young children to deal with whatever challenges they face.
Family Lives - www.familylives.org.uk
National support charity ‘helping families with any problem or challenge they face’.
Parenting Across Scotland - www.parentingacrossscotland.org
Partnership of charities offering support to children and families in Scotland.
National Autistic Society - www.autism.org.uk
National charity for autistic people (including those with Asperger’s syndrome) and their families.
Action for Children - www.actionforchildren.org.uk
Work to make sure every child and young person 'has the love, support and opportunity they need to reach their potential'.
Scope - www.scope.org.uk
Provide support, information and advice to disabled people and their families.
Living Made Easy - https://www.livingmadeeasy.org.uk/
Impartial advice and information about daily living equipment and other aspects of independent living for children, set up by the Disabled Living Foundation.
Family Fund - www.familyfund.org.uk
UK charity providing grants for families raising disabled or seriously ill children and young people.
Turn2Us - www.turn2us.org.uk
National charity helping people in financial hardship to gain access to welfare benefits, charitable grants and other financial support.
The Sleep Charity - www.thesleepcharity.org.uk
Providing advice and support to empower the nation to sleep better
Contact - www.cafamily.org.uk
National charity for families of disabled children.
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