Because of their condition, children and young people miss out on school trips, sports days and sleepovers. Many struggle with their education, missing school because of their health issues.
In some cases, children are being pulled out of school to be home-schooled because of a lack of available support in schools.
I dreaded going to school and was always thinking about when the next soiling incident would happen. Some of the teachers were ok if I needed to go to the toilet in a lesson. Others made a fuss, and it was so embarrassing. I kept my distance from other kids at break and lunch time as I was always worried about the smell. But having no one to hang out with was so lonely. I hated my life.
In summer 2019, 318 parents and carers responded to an ERIC survey looking at the impact of bladder and bowel conditions on families. They told us that 14% of children missed more than a month of school due to their bladder or bowel condition.
Watch to hear young people with bowel and bladder difficulties talking about the difficulties they face at school.