Privacy policy

1. Introduction

1.1 We are committed to safeguarding the privacy of our website visitors and service users; in this policy we explain how we will handle your personal data.

1.2 We will ask you to consent to our use of cookies in accordance with the terms of this policy when you first visit our website.

1.3 This privacy policy was last updated February 2023.

2. Credit

2.1 This document was created using a template from SEQ Legal (http://www.seqlegal.com).

3. How we use your personal data

3.1 In this Section 3 we have set out:

(a) the general categories of personal data that we may process;

(b) the purposes for which we may process personal data; and

(c) the legal bases of the processing.

3.2 We may process data about your use of our website and services ("usage data"). The usage data may include your IP address, geographical location, browser type and version, operating system, referral source, length of visit, page views and website navigation paths, as well as information about the timing, frequency and pattern of your service use. The source of the usage data is our analytics tracking system. This usage data may be processed for the purposes of analysing the use of the website and services. The legal basis for this processing is our legitimate interests, namely monitoring and improving our website and services.

3.3 We may process your account data ("account data"). The account data may include your name and email address. The source of the account data is you. The account data may be processed for the purposes of operating our website, providing our services, ensuring the security of our website and services, maintaining back-ups of our databases and communicating with you. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and business.

3.4 We may process your information included in your personal profile on our website ("profile data"). The profile data may include your name, address, telephone number, email address, profile pictures, gender, date of birth, and social media ids. The profile data may be processed for the purposes of enabling and monitoring your use of our website and services. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and business.

3.5 We may process your personal data that are provided in the course of the use of our services ("service data"). The source of the service data is you. The service data may be processed for the purposes of operating our website, providing our services, ensuring the security of our website and services, maintaining back-ups of our databases and communicating with you. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and business.

3.6 We may process information that you post for publication on our website or through our services ("publication data"). The publication data may be processed for the purposes of enabling such publication and administering our website and services. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and business.

3.7 We may process information contained in any enquiry you submit to us regarding products and/or services ("enquiry data"). The enquiry data may be processed for the purposes of offering, marketing and selling relevant products and/or services to you.

The legal basis for this processing is consent.

3.8 We may process information relating to transactions, including donations or purchases of goods and services, that you enter into with us and/or through our website ("transaction data"). The transaction data may include your contact details, your card details and the transaction details. The transaction data may be processed for the purpose of supplying the purchased goods and services and keeping proper records of those transactions. The legal basis for this processing is the performance of a contract between you and us and/or taking steps, at your request, to enter into such a contract and our legitimate interests, namely our interest in the proper administration of our website and business.

3.9 We may process information that you provide to us for the purpose of subscribing to our email notifications and/or newsletters ("notification data"). The notification data may be processed for the purposes of sending you the relevant notifications and/or newsletters. The legal basis for this processing is consent.

3.10 We may process information contained in or relating to any communication that you send to us ("correspondence data"). The correspondence data may include the communication content associated with the communication. The correspondence data may be processed for the purposes of communicating with you and record-keeping. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and business and communications with users.

3.11 We may process any of your personal data identified in the other provisions of this policy where necessary for the establishment, exercise or defence of legal claims, whether in court proceedings or in an administrative or out-of-court procedure. The legal basis for this processing is our legitimate interests, namely the protection and assertion of our legal rights, your legal rights and the legal rights of others.

3.12 In addition to the specific purposes for which we may process your personal data set out in this Section 3, we may also process any of your personal data where such processing is necessary for compliance with a legal obligation to which we are subject, or in order to protect your vital interests or the vital interests of another natural person.

4. Providing your personal data to others

4.1 We may disclose your personal data to our insurers and/or professional advisers insofar as reasonably necessary for the purposes of obtaining and maintaining insurance coverage, managing risks, obtaining professional advice and managing legal disputes.

4.2 We may disclose transaction and correspondence data to our suppliers or subcontractors insofar as reasonably necessary for the performance of a contract between you and us and/or taking steps, at your request, to enter into such a contract.

4.3 Financial transactions relating to our website and services are handled by our payment services providers, Stripe, PayPal and Apple Pay. We will share transaction data with our payment services providers only to the extent necessary for the purposes of processing your payments, refunding such payments and dealing with complaints and queries relating to such payments and refunds. You can find information about the payment services providers' privacy policies and practices at:

• Stripe (https://stripe.com/gb/privacy)
• Paypal (https://www.paypal.com/ie/webapps/mpp/ua/privacy-full)

4.4 We use Shopify to power our online store. You can read more about how Shopify uses your Personal Information here: https://www.shopify.com/legal/privacy.

We may share your Personal Information to comply with applicable laws and regulations, to respond to a subpoena, search warrant or other lawful request for information we receive, or to otherwise protect our rights.

4.5 In addition to the specific disclosures of personal data set out in this Section 4, we may also disclose your personal data where such disclosure is necessary for compliance with a legal obligation to which we are subject, or in order to protect your vital interests or the vital interests of another natural person.

5. International transfers of your personal data

5.1 You acknowledge that personal data that you submit for publication through our website or services may be available, via the internet, around the world. We cannot prevent the use (or misuse) of such personal data by others.

6. Retaining and deleting personal data

6.1 This Section 6 sets out our data retention policies and procedure, which are designed to help ensure that we comply with our legal obligations in relation to the retention and deletion of personal data.

6.2 Personal data that we process for any purpose or purposes shall not be kept for longer than is necessary for that purpose or those purposes.

6.3 We will retain and delete your personal data as follows: all data categories will be retained for 7 years, at the end of which period it will be deleted from our systems.

6.4 We use some third party software to store your personal data.

• We use Salesforce as our customer relationship management (CRM) database. Their privacy policy can be accessed at https://www.salesforce.com/uk/company/privacy/
• We use Mailchimp to send out regular e-newsletters to subscribers. Their privacy policy can be accessed at https://mailchimp.com/legal/privacy/
• We use Surveymonkey to run surveys on our services. Their privacy policy can be accessed at https://www.surveymonkey.com/mp/legal/privacy-policy/
• We use Eventbrite to enable bookings for events. Their privacy policy can be accessed at https://www.eventbrite.co.uk/support/articles/en_US/Troubleshooting/eventbrite-privacy-policy?lg=en_GB
• We use Fundraise Up to collect online donations. All donation data collected is subject to the provisions of the General Data Protection Regulation ("GDPR"), the California Consumer Privacy Act of 2018 (“CCPA”), and other applicable privacy laws. Non-Personal Information that is collected remains anonymous or non-personally identifiable. All Personally Identifiable Information (PII) is encrypted. Financial information such as banking information or credit card number, name, CVV code or date of expiration, is collected and stored by a third party payment processor. Financial information is not stored by Fundraise Up Inc.When making a donation, information collected may include:

  Contact and account information such as name, email address, physical address, location data, phone number, and social media information;

  Technical information collected. Such information may include standard web log entries that contain IP address, cookies (first party, third party, session, persistent, and flash), web beacons, page URL and timestamp.

  For more information, please see Fundraise Up Inc.’s Privacy Policy.

6.5 Notwithstanding the other provisions of this Section 6, we may retain your personal data where such retention is necessary for compliance with a legal obligation to which we are subject, or in order to protect your vital interests or the vital interests of another natural person.

7. Amendments

7.1 We may update this policy from time to time by publishing a new version on our website.

7.2 You should check this page occasionally to ensure you are happy with any changes to this policy.

7.3 We may notify our website visitors of changes to this policy by posting an update in the news section of our website, or via our social media channels (Facebook and Twitter).

8. Your rights

8.1 You may instruct us to provide you with any personal information we hold about you; provision of such information will be subject to the supply of appropriate evidence of your identity (for this purpose, we will usually accept a photocopy of your passport certified by a solicitor or bank plus an original copy of a utility bill showing your current address).

8.2 We may withhold personal information that you request to the extent permitted by law.

8.3 You may instruct us at any time not to process your personal information for marketing purposes.

8.4 In practice, you will usually either expressly agree in advance to our use of your personal information for marketing purposes, or we will provide you with an opportunity to opt out of the use of your personal information for marketing purposes.

9. Third party websites

9.1 Our website includes hyperlinks to, and details of, third party websites. This privacy policy only governs our website and we are not responsible for the privacy policies and practices that govern third party websites. If you use any link on our website we recommend you read the privacy policy of that website before sharing any personal or financial data.

9.2 We operate a number of social media pages (Facebook, Twitter, and YouTube) and run a community on the network HealthUnlocked. This policy does not cover how the providers of these websites will use your information. Please ensure you read the privacy policy of the social media website before sharing data and make use of the privacy settings and reporting mechanisms to control how your data is used.

10. Personal data of children

10.1 Our website and services are targeted at persons over the age of 18. Content in the ‘Kids’ sections is aimed to help children aged 8-13 years. Content in the ‘Teens’ sections is aimed to help young people aged 13-18 years. If you are under 18 you must ensure that you have parental consent to view our content. By using our website or agreeing to our terms and conditions, you warrant and represent to us that you are at least 18 years of age or that you have gained parental consent to do so.

10.2 Personal data is not requested to access any of our kids/teens content. However, if we have reason to believe that we hold personal data of a person under the age of 18 in our databases, we will delete that personal data.

11. Updating information

11.1 You can update your personal information by contacting us directly – see section 12.

12. Our details

12.1 This website is owned and operated by ERIC, The Children’s Bowel & Bladder Charity.

12.2 We are registered as ERIC (Education & Resources for Improving Childhood Continence) with the Charity Commission in the United Kingdom. Our registered number is 1002424. We subscribe to the Fundraising Regulator's Fundraising Promise.

12.3 We are a Company Limited by Guarantee (no. 2580579) registered in England and Wales. Our registered office is at 36 Old School House, Britannia Road, Kingswood, Bristol BS15 8DB (UK).

16.4 Our VAT number is 567 7948 68.

16.5 Our principal place of business is at the address provided in 16.3.

16.4 You can contact us by writing to the business address given above, by using our website contact form, by email: [email protected] or by telephone: 0117 960 3060.

18. Complaints

18.1 If you have a complaint about us, or the treatment of your data, you can contact the Charity Commission. The Charity Commission is the independent watchdog for charities. You can make a complaint about a charity on their website at https://www.gov.uk/complain-about-charity.

18.2 If you have a complaint about our fundraising activities you can also complain to the Fundraising Regulator. To find out how to go about making a complaint, go to the Fundraising Regulator website: https://www.fundraisingregulator.org.uk/make-a-complaint/complaints/.