Signposting and links


Support groups

Social network for health with over 500 communities covering a wide range of health issues. Visit ERIC’s message board to chat to others experiencing a childhood bowel or bladder problem.

Child Continence Support Group (CCSG) - Facebook

Movicol Mummies (Facebook)

Encopresis Support UK - Facebook page

Daytime Wetting in Children and Teens  Facebook page

LIBBI UK - Leaks, incontinence, bladder and bowel issues (Facebook)

Encopresis Support Worldwide (Facebook)

Children's Continence Support (Facebook)

Mitrofanoff Support Group - Facebook page

Bowel and bladder health information

Stop Bedwetting -
Offers support and information about childhood bedwetting to patients and health care professionals.

World Bedwetting Day -
International campaign to raise awareness about this common condition and encourage families to get help.

Bladder and Bowel UK (formerly PromoCon) -
Part of the organisation Disabled Living, provides advice and support to help manage any kind of incontinence, bladder or bowel-related issue.

Bladder and Bowel Community -
Support, information and guidance for people with bladder and bowel control problems.

Bladder Health UK -
Provides support to people suffering from all forms of cystitis, overactive bladder and continence issues.

Mitrofanoff Support -
Provides emotional support, reassurance, information and networking opportunities for those who have had the Mitrofanoff procedure.

CHAMPS Appeal -
Supports children living with Hirschsprung's Disease and their families during diagnosis and surgery. Also provide post-operative support and activity days.

Colostomy Association -
The Junior Ostomy Support Helpline (JOSH) for parents and carers of children who have had bladder or bowel surgery resulting in a stoma or bladder augmentation.

The UK Paruresis Trust
Supporting those struggling with Shy Bladder Syndrome

National Institute for Health and Care Excellence (NICE) guidelines

Bedwetting in under 19s -
Guidance on the assessment, care and treatment of children and young people up to the age of 19 with bedwetting.

Constipation in children and young people: diagnosis and management -
Guidance to support the early identification, positive diagnosis and timely, effective management of constipation in children and young people.

Urinary tract infection in under 16s: diagnosis and management -
Guidance on the care and treatment of babies, children and young people under 16 with a urinary tract infection (UTI).

eLearning for health professionals

Coloplast online training portal -
Management of Bladder & Bowel - Paediatrics course  (you will need to register an account to access the course).

Support for children and teenagers

Childline -
Private and confidential service for children and teenagers up to the age of 19 to help with any issue or problem they may be experiencing.

The Mix –
Provides information and emotional support to 13-25 year-olds and helps them to open up about difficult issues.

Great Ormond Street Hospital -
Offers information for children on their health condition and treatment and what to expect when they go to hospital.

Go Against The Flow -
Australian health awareness initiative designed to empower teenage girls to tackle bladder incontinence and develop their pelvic floor muscles.

Incontinence in Confidence -
The Continence Foundation of Australia's support website for teenagers.

Help with bullying

Bullying UK –
Part of the organisation Family Lives, provides general advice on all aspects of bullying for children, young people, parents and schools.

Kidscape -
Equips young people, parents and professionals with the skills to tackle bullying and safeguarding issues across the UK.

Support for parents and carers

Patient -
Independent health platform providing information for both patients and health professionals.

Medicines for Children -
‘Practical and reliable advice about giving medicine to your child’ – includes leaflets written by paediatricians and pharmacists.

The Breakaway Foundation -
UK-wide charity supporting children and young people with bowel and/or bladder diversions and dysfunction.

Home Start –
UK family support charity. Home Start volunteers help families with young children to deal with whatever challenges they face.

Family Lives -
National support charity ‘helping families with any problem or challenge they face’.

Parenting Across Scotland -
Partnership of charities offering support to children and families in Scotland.

National Autistic Society -
National charity for autistic people (including those with Asperger’s syndrome) and their families.

Action for Children -
Work to make sure every child and young person 'has the love, support and opportunity they need to reach their potential'.

Scope -
Provide support, information and advice to disabled people and their families.

Living Made Easy for Children -
Impartial advice and information about daily living equipment and other aspects of independent living for children, set up by the Disabled Living Foundation.

Family Fund -
UK charity providing grants for families raising disabled or seriously ill children and young people.

Turn2Us -
National charity helping people in financial hardship to gain access to welfare benefits, charitable grants and other financial support.

The Sleep Charity -
Providing advice and support to empower the nation to sleep better

Contact -
National charity for families of disabled children.

Skiggle -
Charity with an online marketplace for rehoming disability care supplies including continence products.



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